Showing posts with label diagnosis. Show all posts
Showing posts with label diagnosis. Show all posts

Sunday, May 12, 2013

*Healthy As An Ailing Horse

Just weeks before our big wedding day, Mother’s Day 2011 to be exact, Shyam and I took Mum to our favorite little Ojai diner, Bonnie Lu’s, for breakfast.
“I just can’t eat any more. It’s so good, but I’m stuffed,” Mum said, her face a bit pained.
“You’ve only taken a few bites. Do you have a stomach ache?”
“It’s more like acid reflux, I think. It burns, kind of like heartburn, but I also feel really full after only a few bites. It’s been like this for a while but the doctor said I’m healthy as a horse! I usually have antacids with me but I ran out yesterday.”
 I found the horsey doctor report hard to believe because Mum had clearly never taken good care of her body, to put it lightly. But who was I to question? I also couldn’t imagine a doctor using the phrase “healthy as a horse” for any patient, even if he was referring to Mr. Jack LaLanne himself. It sounded more like a Nana phrase than anything else and in the back of my mind I wondered if she was making that bit up because she didn’t want to worry us with a negative health report and she surely didn’t want us meddling with her seven plus beer per night habit. I knew after years of her heavy drinking, her liver could in no way be picture perfect and I worried it would one day fail her. I didn’t see how a damaged liver would cause her to feel full after eating three bites of scrambled eggs.
After breakfast, Mum and I headed to our local health food store and I purchased digestive enzymes and chewable probiotics for her, since they’ve been working wonders for me after my doctor prescribed them for my own digestion issues. Surely this would, if anything, briefly relieve her of some pain and discomfort.
If she’d only stop drinking, I thought.

A week later I called her to follow up.
“I’m still not able to take more than three or so bites.”
“Well, have you gone back to the doctor? Something is definitely wrong.”
“She said I’m healthy as a horse.”
There’s that phrase again.

Excerpt from chapter twenty-nine | feelin’ alright | Everything’s Hunky Dory: A Memoir

Monday, July 11, 2011

Figuring It All Out—What brought about obtaining a diagnosis.


Hello folks. It’s been a while. Since I last wrote I’ve been married, started school for Holistic Animal Massage, was let go from a job for “lack of work,” learned how to take apart and fix a lawnmower and much, much more. Each of these items are, in my mind, “blog worthy,” however, I will save those topics for a later date . . . once I’m able to get my head wrapped around them.
It seems I’ve been approached with the following question from several people lately: “What made you look into a diagnosis at the age of 35?” It’s tough to answer that without going into a signature Aspie dialogue, but that’s what’s so great about blogging! I can write, you can read (or not), no awkward moments!
I always knew as a little girl that I didn’t quite fit in with others my age. I was never one to be attracted to groups or cliques, group sports, Chinese Jump Rope, or playing with baby dolls (I admired dollhouses, but really was only interested in the technical aspects, such as how they were able to so precisely scale a house down (the beginning of my fascination with movie set miniatures).
When not imitating a dog, I preferred to play on the swings where I could be alone and think—figure out the Universe as it were. There I would conjure up stories in my head about how I could be a hero—save the world, fight for the underdog. I would silently converse with myself about the facts I had read the night before in the Encyclopedia Britannica because I had learned the hard way that my classmates had no interest in the fact that Oxnard (the town I grew up in) was named after the Oxnard brothers who grew sugar beets or that the Potato Bug is actually a Jerusalem Cricket even though they don’t originate in Jerusalem, nor are they related to crickets.
I enjoyed playing in my head over and over again the images of Steve Martin (have I mentioned I was in madly in love with him?) doing his “King Tut” and “Wild and Crazy Guy” skits. After school I hung out with my grandfather, a computer engineer—to me the smartest man alive—or younger kids such as my brother and cousins, as I only felt comfortable in the student or teacher role, never the peer (wow, just realized that still applies . . . I’ve got some work to do!). I didn’t know anything about Autism back then—I just knew I was a little different. I believed I must have a special purpose, I must be linked in with some higher power . . . and maybe, just maybe, magic.

Dec. 1976. 1 1/2 years old, no doubt pondering
the aerodynamics of Santa's 8 tiny reindeer.

As I grew older things didn’t change much. I began at age seventeen locking myself in my bedroom after school so that I could read the entire bible and completely ‘figure it all out’. If that book was ‘the truth’, it was a must read. Seeing that the King James was the only version we somehow managed to have in the house, it wasn’t easy to translate (as intended). At age eighteen I completely involved myself in a church and became a celibate monk until hitting my late 20s. While others my age were dating, socializing with co-workers and learning to be “grown-ups” I was spending hours in prayer, fasting, and studying. It was never a challenge. I loved the discipline of it, the rules were easy for me to abide by and I felt I finally had a chance to be a “hero”. Until I stopped.

I attempted to “socialize” with others my age once I left the religious life behind. I went to a dance club with friends. A guy grabbed my arse. I instinctively punched him hard in the stomach, then realized how illogical it was for me to be at such a place. I wasn’t looking to know any of these people! So I left, never to return. I went to a bar with a friend. I took three sips of a Corona, then began to psychoanalyze everyone in the room (which is one reason I don't drink today): 

“He walks hunched over because he was criticized by his mother all of his life. He’s speaking to that older woman because he’s looking for a woman to be the mother he never had.”
“She is still trying to get her daddy’s attention she never received as a child so dresses provocatively,showing as much skin as she can get away with even though for California standards, it’s considered freezing outside.”

Terrible! My friend wanted to flirt with the guys. I thought one was attractive—in fact, a Television actor I’d had a silly crush on for years. He approached me. I began a conversation about my recent journey down the path of Tibetan Buddhism, studying Taoism and my most recent book purchase, Everyone Poops by Taro Gomi. That was the end of that.  I had no clue as to why I was so awkward. I would watch my friend act strangely —what I suppose you’d call “flirting”—and didn’t have the slightest idea on how to do it, nor did I feel inclined to. I figured if you want to get to know someone, you should be direct and just tell em’. Stop the game playing. There’s got to be somebody out there who doesn’t want to drink, get high on illegal substances, and intimately touch strangers. Is there a human in Los Angeles that knows anything about humanity, psychology, real spirituality, oneness with the Universe?! Conversations became increasingly difficult with women and men alike.

"I don’t need to buy shoes, I already have 2 pair. Let’s watch a documentary about blood diamonds instead!"

“No, I’d rather not go dirt-bike riding. Why would anyone want to take a boisterous, oily contraption such as that into the beauty of nature and scare all of the wildlife away? Makes no sense!”

I gave up on socializing with twenty-somethings and took a stab at stand-up comedy, something I had dreamed about since I was four years old, staring at the Steve Martin poster on my bedroom wall, watching "Saturday Night Live" and Eddie Murphy's "Delirious." Boy, this was good times. I’d write, get on stage, do my thing, then slip into a quiet corner in the back of the Comedy Store, just observing. All us comics were freaks so I finally sort of fit in somewhere, with some of the guys at least . . . until I did enough self-work to realize I no longer needed applause to be happy. Eight years later, on to the next special interest.

I began working in the feature film industry.  What I learned here was that there were two kinds of people on set:
a) those that spend their per diem drinking, getting high on illegal substances and intimately touching strangers

b) other freaky geeks like myself

I have met some of the smartest people working in the film industry. Some geniuses that had invented special cameras, some that could build anything in a matter of minutes, creativity at it’s best. Amazing. On some shows I thrived socially, mainly because I was able to do what I do best - learn. On some, I flopped. A few years prior, a friend suspected one of our crewmembers had something called “Asperger’s.” Wow. All I could think of was how funny “ass burgers” sounded. Terribly amusing, the name appealed to my earthy, childish sense of humor. She then wrote out by hand what Asperger’s was, at least did her best at listing the diagnostic criteria and what not, and though I laughed like a child at the name, I was humbled by the familiarity. It was as if she was writing about me! Since that time I researched and read books and asked questions and speculated. It was a situation that occurred during the last movie I worked on that led me to finally look into a diagnosis.

I discovered that eating lunch alone on this show really worked for me as I loved to read and just revive myself by getting away from the chaos for a bit and breathing. A few of the girls in the production office had asked several times if I would join them for lunch. One day I finally gave in and decided it would be a “good thing” to get to know these women. They were sweet enough to ask, why not? It won’t kill me to put down Autobiography of a Yogi for one lunch hour! We all sat down outside on a warm Philadelphia spring day. They each began sharing updates on their favorite reality TV shows – who cheated who, who slept with who, who was pissed at who . . . and on and on. I had no idea what they were referring to, as the only shows I would watch on Television (if I watched at all) were 'The Dog Whisperer', 'NOVA', and 'The Daily Show with Jon Stewart'. A few days before I had begun writing a research paper I was doing for myself on the affects of alcoholism on indigenous people, so when they asked me what I had been up to, I began to share with them my amazement on how entire countries have been taken over with alcohol being the force and weapon.  

"Aboriginals in Australia, Maoris In New Zealand, Native Americans, the Native Alaskans . . ."
silence hit the table, you could hear a pin drop. 

Until one of the girls looked at another and said, 

“Are we getting drinks tonight? Where do you want to go?” 

Then I realized, "You know, I just can’t seem to hold a 'normal' conversation it seems." So I found a psychologist in the Philadelphia area who began observing me, asking me questions and giving me tests. I wrapped the show, returned to California and was referred to an amazing doctor in Santa Monica who specializes in Autism. I then received my official diagnosis which helped me to get a grasp on the “whys” of my social quirks.

Though in my blogs I discuss the differences between myself and Neurotypicals (those not on the autism spectrum) I want to share that these stories are all a part of my journey toward understanding self, how my brain works and ultimately seeing that though my brain is wired differently than some, we are the same. I am finding more “sameness” each day in others and myself as I study more about my overactive amygdala and asking questions as I go along. All in all, acceptance is the goal—acceptance of differences, because I believe love is a child of acceptance as well as the wellspring of life. 

My definition of Asperger’s for today: A gift of leaving no stone unturned - ever. ;0)

Tuesday, December 7, 2010

The Diagnosis

Asperger's Syndrome. That's my diagnosis. November 9th, 2010 is the day I will always remember as being enlightened, seeing clearly, having that 'a-ha!' moment, and for the first time, feeling 'right' inside my own body. I'm an Aspie.

What is Asperger's, you ask (after giggling at the name as I did when I first heard it . . . go ahead . . .say it out loud!)? Let me introduce you to one of my best friends, Wikipedia (we spend A LOT of time together): http://en.wikipedia.org/wiki/Asperger's. (In future blogs, I will reference a variety of resources in which you may use to familiarize yourself, your loved ones, your pets—although they could care less, and your employers with Asperger's syndrome and all it entails. I am forever a student and am excited to share with you what I have and am learning each day.)

I've always been different, never feeling like I belonged in any group, job, or social setting. Even in friendships I've had the past 35 years of my life, I have never experienced that deep, emotional connection I would see people share in movies or as described in books and magazines. As a child, I was more interested in reading the entire Encyclopedia Britannica than bonding with other children. And while other children were saying things like "rad" and "awesome," I was responding with words such as "interesting concept" and "that's fascinating.” By the time I was eight, I had read every dog book my elementary school library contained and was training every dog I could get my hands on. I was an expert on breeds and could tell you in a millisecond what breed of dog you had, and if mixed, what various breeds your canine had in his genes (special interest, much?). I had no interest in wearing a bra, deodorant, nor going through puberty, period (oh, and that too . . . period . . . gross!), which caused a lot of problems in the friendship department, especially with little girls who wanted to wear red lipstick and kiss cute boys and wear baby blue jelly shoes and paint their nails with Hello Kitty designs and FLIRT (still haven't managed to grasp that last one).

"What's WRONG with you?" was a question addressed to me a million times over while growing up and even as an adult. And in my teenage years—those awful, painful, anxiety ridden, insecurity filled, teenage years (oh, the misery!)—I began to ask myself the same question . . . which lead me to an adulthood obsessed with psychology, spirituality, self-help books, gurus, stand-up comedy, meditation, and ultimately, self-realization. And through that experience, with the obsessions being my key, I've been able to unlock the door to semi-normalcy, masking the social anguish with an Oscar worthy, exhausting act.

Today, I have the answer to that life-long question, and I can honestly respond by saying, "here's what's RIGHT with me" instead. The label, the diagnosis—the FREEDOM—I can laugh about it and share it with you, in hopes that my authenticity reaches those souls out there who feel misunderstood, and also for those of you sharing your lives with people like me. So join me on my journey . . . and experience the misadventures of Aspie Girl!